Pray For Phoebe: Updates about Phoebe's treatment for her brain tumour and ongoing rehabilitation
Sunday, 28 June 2015
Red Letter Day!
This morning (Saturday) I was
surprised and delighted by a phone call from Matt to tell me that Phoebe was
being allowed out for an hour to the park opposite the hospital. I have
never been so thrilled to spend an hour in a park! The sun was shining
and the five of us got an hour of near normality – Phoebe even fancied a few
licks of Rachel’s ice cream! Phoebe’s isolation room overlooks the road and
the park, and during the week Reuben and I had waved to Phoebe and blown kisses
up to her at the window, butInever expected to be able to
hold her hand or give her a cuddle as we sat on the grass. She looked so sweet, unselfconscious
in her head-covering made out of an NHS pillow case!
Our main concern this week
has continued to be the tiny amount of food she is consuming; even the liquid
nutrients going through her nasal tube getvomitedback
up so that her body is receiving very little nutrition. But her spirits remain amazingly
bright and she keeps busy with drawing, craft and school work. She has an
hour a day with a teacher, and is also being sent work from her school to help
her keep up with what the rest of her class is doing.
Meanwhile Reuben continues to
enjoy his mornings at nursery, and our afternoons together have includedpicnic lunches in the garden,scooting, football, games of
Memory (whichhe wins
easily!), jigsaws and playing with Bramble the dog.