But life is nonetheless not easy for the whole family as we adjust to this new phase. We all feel tired and emotional – the tensions and stresses of the preceding months are taking their toll. The simplest way to put you in the picture is to quote Matt’s latest Facebook update:
It's been over a week since Phoebe was discharged & while it is lovely to be home together, life unexpectedly feels more difficult than it did in hospital. Without the support of medical staff we are always thinking about fluid targets, NG feeds, medication, physio, sickness, rest time etc. Phoebe's body needs huge amounts of energy to heal up and recover after all the damage caused by chemotherapy and radiotherapy, so there is little energy leftover for normal daily activity. It is very difficult to know what our new 'normal' is or should be.
Both kids are having to re-adjust to life home together, lots of tears and difficult moments for each of them as they have to share our attention with each other and all the responsibilities that come with running a home. In hospital we could focus solely on Phoebe but at home that simply isn't possible and it's a steep learning curve for her. We feel we can't give Phoebe or Reuben every bit of attention they crave & that's difficult because they are both extremely needy emotionally right now.
The constant weight of living with cancer seems to taint all we do and it's exhausting. We fight for joy but it is a real fight and doesn't come easily. We look to the promises we have in Jesus and long for them to come soon.
Please pray for:
- physical & emotional rest, as we are all exhausted from broken sleep, colds and the constant weight of living with cancer.
- Phoebe that her stamina, strength & appetite will quickly return.
- Reuben as he battles behavioural issues.
As always, big hugs y'all! Xx
We are so grateful that you have been following us in this journey with Phoebe, and thank you for all your prayers. Please keep praying.
Many thanks
Marcus ans Jen
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