Phoebe has now been home for eight weeks! In this time she has continued to make slow but steady progress in her return to normal life. Her previous almost non-existent appetite has grown so that she is now having small meals plus snacks, and even saying “I’m hungry”! After having to coax her to try even part of a biscuit before, this is a really encouraging step forward. A couple of weeks ago her nasal tube came out (when she vomited) and Rachel and Matt decided to see how she managed without the overnight feeds. It was lovely to see her face free of a tube and plasters keeping it in place!
Her latest MRI scan showed no new cancer growth in either her brain or spine, much to our obvious relief. Of course she will continue to be monitored for a long while to come, with her next check up due in early January.
Her attendance at school every other day continues; she is managing two hours each time at the moment. Today (Monday 30th) is another red-letter day as she was back in hospital under anaesthetic, to have her broviac line (in her chest for administration of drugs) removed. She came home delighted to be without it, as once the wound heals she will be able to go swimming and to have deep baths!
Saturday was a wonderful joyous day - Phoebe's 'End of Treatment' party! Rachel and Matt invited the many, many people who have supported them during this most difficult period of their lives, to come and celebrate the end of Phoebe’s treatment. Phoebe asked to stay up late, dance and eat marshmallows, and between 200 and 300 people came along to do just that! (We did eat a few other things too!) The dance studio where the party was held laid on a surprise for Phoebe – two professional dancers demonstrating various dances for about 10 minutes. Phoebe was thrilled. Friends travelled over from Spain, friends and family came from far and wide in the UK, and of course lots of local friends were there. Matt made a very moving speech thanking people for their support and speaking of how Phoebe’s, Rachel’s and his faith had grown during their severe trial.
We too feel that our faith has become more precious to us during these months as we have had to lean on the Lord more than ever, for physical, mental, emotional and spiritual strength. It has been humbling to know that so many have been praying for us, as well as sending gifts, making meals and encouraging us in so many ways.
THANK YOU ALL!
Marcus and Jen
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