A quick update for everyone's encouragement: the steroids have made a big difference already - Phoebe is more energetic, more focused, more cheerful and has a significantly increased appetite. We were thrilled when we weighed her today to find she is 50 pounds which has been our goal weight for many months. We're very thankful that the Lord is using this steroid hormone to bring relief to our many months of longing to see her eat and gain strength. It is also a joy to see her coping better with life - we've seen fewer tears and a greater self-confidence. It's amazing to realise that her body's inability to create its own cortisol explains, at least in part, why she has seemed so 'down' as well as so tired.
The three hormone replacement drugs she is now on, she will be on for life. But we are keen to try to reduce as many of the other medications as possible and look for alternatives through diet and natural supplements to help promote brain health and function. Please pray for wise decisions on our part as we do our research.
Even though we are so encouraged with Phoebe's progress, we have been deeply saddened this week to hear of the passing of two children to cancer. One was a little boy we met in the hospital in Mobile who had stomach cancer, the other is a little girl from Yorkshire who underwent her brain tumor treatment in Florida. We ask for your prayers for their families. It's a sobering reminder to us that we are so blessed to still have our Phoebe with us, and that every day we are still a family of four our hearts should be full of gratitude.
Thank you for your continued love and support. Big hugs!
What great news! We praise the Lord for such good coming out of Phoebe's last stay in hospital.
How sad for the two families who have lost their children. May they know God's help in their sorrow.
Once again many thanks to all who pray for Phoebe and family.
Marcus and Jen
_______________________________________
For email subscribers:
You have subscribed to receive email updates from the www.prayforphoebe.org blog.
We know that our journey with Phoebe is being repeated again and again in other families around the world, and that other people and situations may become your new focus and concern. If you no longer wish to receive these updates, simply click on the 'unsubscribe now' link at the foot of this email. Thank you.
