More on the new normal

For a few weeks Phoebe has been going to school on Wednesday mornings as well as all day on the other days.  The 6 hydrotherapy sessions went well; Rachel was impressed with the two physiotherapists (one in the pool, one on the side) who worked with Phoebe.  Reuben and Phoebe have now started going to a new swimming class together after school on Tuesdays which they both enjoy.

All this is very positive, but of course alongside it are many ongoing challenges.  Phoebe is supposed to do physio exercises every day, and needs to do extra reading and number work to try to keep up at school, but once home from a day at school she is very tired; this makes it hard for Rachel to know how much to persuade her to do and how much to allow her just to relax and have some fun.  There is also always the need to keep reminding her to drink so that her kidneys function as well as possible.

During the school holidays we are planning to help out most mornings so that the care of two children with very different needs - plus a dog who needs walking – can be shared.   We have booked a holiday in the Forest of Dean with Rachel & the children and Jon, Heather & Rosanne.  The Lollars will also have 10 days away as a family.

Reuben will be starting school in September so it will be all change again!  He will then also have after-school reading to do so we may well each go over once a week to help Rachel with that challenging time of day. Matt gets home from work at tea time so can always be there for bath- and bed-time, but not the 3.30-5.30 slot.

Hopefully this gives you a little insight into life-after-cancer-treatment for a 6 year old child and her family. We very much appreciate your continued interest and prayers for hope and perseverance for us all.

Thanks!

Marcus and Jen
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Yet we also know that our journey with Phoebe is being repeated again and again in other families around the world, and that other people and situations may become your new focus and concern. If you no longer wish to receive these updates, simply click on the 'unsubscribe now' link at the foot of this email. Thank you.

Another clear scan!

We are delighted to report another clear MRI scan for Phoebe.  The 10 days between a scan and the results are not easy; Rachel and other parents of cancer patients call it a time of “scanxiety”.  Phoebe is part-way through 6 weekly sessions of hydrotherapywhich we hope will help to strengthen her core muscles weakened by aggressive treatments and months of inactivity last year.

Reuben - in his fundraising outfit!

It is becoming clear that Phoebe is finding it hard to keep up with her peers at school as her ability to concentrate and to remember are impaired.  We are hoping she will soon have some more special needs help in place.  She still takes Wednesdays as a rest day.

We have just been away for a week and yet again have been so heartened to meet people who are still praying for Phoebe six months after she came home from hospital.  Some of these have never met us before; what a huge encouragement it is to be part of the Christian family where unknown brothers and sisters are supporting us so faithfully.

Since completing the Sheffield half-marathon in aid of the Children’s Hospital, Matt has run the Leeds half marathon as well!  Rachel plans to run the Worksop one in October.  They are now concentrating their fundraising efforts on The Brain Tumour Research Trust (although Rachel is also busy baking for a tea party in aid of Weston Park Hospital where Phoebe underwent her radiotherapy treatment).  

Here is a fundraising video of Phoebe (you may need to skip the ad) encouraging support for Brain Tumour Research! We praise God for the progress she has made, and trust Him for the future.

Marcus and Jen
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Yet we also know that our journey with Phoebe is being repeated again and again in other families around the world, and that other people and situations may become your new focus and concern. If you no longer wish to receive these updates, simply click on the 'unsubscribe now' link at the foot of this email. Thank you.

Mission accomplished!

Team Phoebe before the race

 We are delighted to report that Rachel and Matt both completed the Sheffield half marathon last Sunday, and with their friends who made up this year’s “run for Phoebe” team, raised almost £8,000 for the children’s hospital charity.  We are so proud of them!  As last year, we took Phoebe and Reuben to cheer the runners about two miles from the finish line, and were amazed at how relaxed and happy Rachel and Matt looked as they went past – we had expected them to be completely exhausted by that stage!  Of course the tiredness has kicked in since, but what an achievement!  Team Phoebe came back to the Lollars’ home after the race and shared lunch in the sunshine, wearing their well-deserved medals!

Finally the medals and photo!

Two weeks before Easter Rachel and Matt took the children to Florida to visit Matt’s parents, sisters and their families.  A great time was had by all!  We were so pleased to see photos of them all looking so relaxed in the warm weather and having normal family fun together.  The children coped well with all the travelling and seemed almost unaffected by jet lag on their return.

Phoebe is back to school, still taking Wednesdays as rest days.  She has some physio exercises to do to strengthen her muscles and improve her balance, and is soon to have some hydrotherapy sessions too.  The taste and smell of some food still makes her gag, but generally her appetite is good and she responds well to the continual reminders to keep drinking from her water bottle.


We are so glad to live near enough to be involved in Phoebe and Reuben’s lives.  They sometimes stay with us overnight, and we each have our time with Phoebe during the week – Jen on Mondays while Rachel takes Reuben to his swimming lesson, and Marcus on Wednesdays while Rachel walks the dog.  We are looking forward to the bank holiday weekend when Jon, Heather and Rosanne will be coming to stay and we will have all three grandchildren together.

Praise God from whom all blessings flow!

Marcus and Jen
_____________________________________________________________

Yet we also know that our journey with Phoebe is being repeated again and again in other families around the world, and that other people and situations may become your new focus and concern. If you no longer wish to receive these updates, simply click on the 'unsubscribe now' link at the foot of this email. Thank you.

Remission!

Phoebe recently had another scan to check for any reappearance of cancer and heard on Monday that the scan was clear.  She is now officially in remission!  This is such good news!  We know that it’s still possible that there may be a relapse in future, but how wonderful that she and the family can go off on their American holiday having this reassurance. We praise God!

Phoebe is still slowly building up her hours at school; Wednesdays are still rest days, but she is now attending for two whole days and two part days most weeks.  The three pancakes she had for breakfast when she stayed overnight with us last weekend are testament to her improved appetite!

Rachel and Matt continue to train for the Sheffield half marathon, though both have suffered set-backs; Rachel suffers pain in her knee and lower leg, and Matt has damaged a hamstring.  They would be so encouraged in their efforts if anyone else wants to sponsor them to raise funds for the Sheffield Children’s Hospital Charity, by going to

• https://www.justgiving.com/Rachel-Lollar/
• https://www.justgiving.com/mattlollar

Phoebe’s hair growth is still extremely patchy; a friend recently made this lovely hat for her.  It might be a bit too warm for Florida but is very appropriate in Yorkshire!

Recently we were very interested to read in the local newspaper, The Sheffield Star, "Children's Hospital brain tumour care 'best in the world'"! More details at TheStar.co.uk. It is wonderful that this hospital is so close to us here in Sheffield. Just one example of God's wonderful providences.

Our "new normal"

Now that the school term is well underway we are all used to our “new normal” – until the next change comes along!  Matt returned to full-time work for the first time since Phoebe’s diagnosis last February.  His employers, BirchenallHowden Ltd, have been wonderfully supportive and generous.

Pyjama day!

Phoebe now attends school for four mornings a week, with Wednesday as her pyjama day.  She has a sleep every afternoon and is gradually gaining strength, greatly helped by the return of a healthy appetite.  It’s such a joy to see her tucking into food instead of being persuaded to eat a tiny morsel.  She tries to drink plenty of water as her kidneys were damaged by the chemotherapy.  There is still no sign of a physiotherapy appointment.

Reuben continues with nursery every morning and swimming lessons on Monday afternoons.  Jen looks after Phoebe while he swims, and Marcus does the honours with her on Wednesday mornings while Rachel walks the dog and then goes for a run.

SCH runners in the 2015 Sheffield half marathon + Phoebe!

Last April quite a few of Matt and Rachel’s friends ran the Sheffield half marathon, to raise funds for the cancer ward of the Sheffield Children’s Hospital (SCH) where Phoebe spent so much of the year.  This time Rachel and Matt are training for it themselves and plan to run in Phoebe’s honour.  If you would like to sponsor them, please go to JustGiving.


Rachel and Matt have booked to take the children to visit Matt’s family in Florida in March.  They were shocked by the price of insurance for Phoebe – most companies would not even consider insuring her.  This is another aspect to the “new normal”.  But it will be a great boost for them to have this holiday together, and wonderful for Matt’s parents and sisters and their families to spend time with them.


We do thank you for your ongoing interest and support for us and our family.  One Christian friend has sent Jen a text every day since Phoebe was diagnosed last February, and continues to do so.  We have learned how dependent we are on others to encourage and comfort us – in other words to spur us on with courage and strength – and we are not embarrassed to say so. But our greatest source of hope and strength continues to be our Father God.

Marcus and Jen
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Yet we also know that our journey with Phoebe is being repeated again and again in other families around the world, and that other people and situations may become your new focus and concern. If you no longer wish to receive these updates, simply click on the 'unsubscribe now' link at the foot of this email. Thank you.

Into the New Year

We know that many of you continue to pray for Phoebe and the family, for which we are extremely thankful.  Although we have celebrated the end of her treatment, life does not just go back to the carefree pre-cancer days of last year and we will all need your ongoing support as we enter this new year.

Phoebe has continued to eat better and her energy levels are slowly improving.  She is still quite unsteady on her feet, something which we hope will get better when she is able to start physiotherapy and hydrotherapy – it would be great if that is sooner rather than later!  She recently had a chest infection and was unfortunately allergic to the anti-biotics, not something that was an issue before.  Her skin became very red and itchy and one evening Matt & Rachel resorted to giving her cold bath of oatmeal, just like they had to do for her in hospital.  We had thought those days were behind her.

Some of Phoebe’s hair is growing back, but it is patchy; it seems that the large bald patch on the back of her head (where the radiotherapy was directed at the site of the tumour) is going to be permanent.

A visit to Millhouses Park

We have spent a very happy couple of days together over Christmas; we can’t say how thankful we are that she was not only with us to celebrate the coming of Jesus into the world as a baby, but that she could enter into it all with enthusiasm – being an angel in the school nativity, enjoying a pantomime at school, having family and friends visiting at home.

She will continue with part-time attendance at school as the new term begins, and of course there will be clinics and check-ups for a long time ahead.  On 30^th December she will be 6 years old (and hopes to celebrate by going swimming!) and on 4^th January Reuben will be 4.  What a lot they have both had to contend with in this past year!


Marcus and Jen
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Yet, we also know that our journey with Phoebe is being repeated again and again in other families around the world, and that other people and situations may be your current focus and concern. If you no longer wish to receive these updates, simply click on the 'unsubscribe now' link at the foot of this email. Thank you.

Rejoice with us! - and our own dancing show

The Bible teaches us to 'weep with those who weep' and to 'rejoice with those who rejoice'! We are so thankful for those who have wept with us this year, and now hope you will also rejoice with us!

Phoebe has now been home for eight weeks! In this time she has continued to make slow but steady progress in her return to normal life.  Her previous almost non-existent appetite has grown so that she is now having small meals plus snacks, and even saying “I’m hungry”!  After having to coax her to try even part of a biscuit before, this is a really encouraging step forward.  A couple of weeks ago her nasal tube came out (when she vomited) and Rachel and Matt decided to see how she managed without the overnight feeds.  It was lovely to see her face free of a tube and plasters keeping it in place!

Her latest MRI scan showed no new cancer growth in either her brain or spine, much to our obvious relief.  Of course she will continue to be monitored for a long while to come, with her next check up due in early January.

Her attendance at school every other day continues; she is managing two hours each time at the moment.  Today (Monday 30th) is another red-letter day as she was back in hospital under anaesthetic, to have her broviac line (in her chest for administration of drugs) removed.  She came home delighted to be without it, as once the wound heals she will be able to go swimming and to have deep baths!

Saturday was a wonderful joyous day - Phoebe's 'End of Treatment' party!  Rachel and Matt invited the many, many people who have supported them during this most difficult period of their lives, to come and celebrate the end of Phoebe’s treatment.  Phoebe asked to stay up late, dance and eat marshmallows, and between 200 and 300 people came along to do just that!  (We did eat a few other things too!)  The dance studio where the party was held laid on a surprise for Phoebe – two professional dancers demonstrating various dances for about 10 minutes.  Phoebe was thrilled.  Friends travelled over from Spain, friends and family came from far and wide in the UK, and of course lots of local friends were there.  Matt made a very moving speech thanking people for their support and speaking of how Phoebe’s, Rachel’s and his faith had grown during their severe trial.

We too feel that our faith has become more precious to us during these months as we have had to lean on the Lord more than ever, for physical, mental, emotional and spiritual strength.  It has been humbling to know that so many have been praying for us, as well as sending gifts, making meals and encouraging us in so many ways.  
THANK YOU ALL!


Marcus and Jen
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Yet, we also know that our journey with Phoebe is being repeated again and again in other families around the world, and that other people and situations may be your current focus and concern. If you no longer wish to receive these updates, simply click on the 'unsubscribe now' link at the foot of this email. Thank you.