(For those with access to Facebook, some of these updates are also available by going to the #PrayForPhoebe group.)
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Matt in #PrayForPhoebe
[23.41 in UK and 17.74 in Mobile, 7th Aug]
Today (Monday) has been very uneventful which is a welcome break as the last week has had more drama than we would like.
Phoebe ended yesterday (Sunday) having had two seizures, one 27min and the other 25min. It's been decided to stop the oral Valproic Acid and go back to IV as the antacid used to help side effects of steroids is simple blocking to much of the absorption. The neurologist is keen to get her off of steroids and so today she has begun IVIG (Intravenous Immunoglobulin). IVIG can help with swelling and it will also give her immune system a bit of a break as it's essentially someone else's immunity helping her immune system out. If she does have an auto-immune disease this should help. The neurologist says he has had very good results with it but it can cause severe headaches. She needs 5 days of IVIG which means we are in for at least that much longer.
Please pray that this treatment will work quickly as there isn't a great deal more they can do after this! Controlling seizures is no priority #1 as Phoebe is improving a lot physically but mentally/neurologically she isn't.
Reuben starts school tomorrow, we all feel sad that he and Phoebe aren't starting together, please pray for him as he settles in to a new culture and school system and that he makes friends quickly. Please pray Phoebe will be able to join him soon.
Please pray for Rachel & I as we are tired and it's difficult not having a set end in sight.
Big hugs!
"In all our sorrows, Jesus is better, make my heart believe!" 
Rachel Lollar in Facebook
[14.50 in UK, 08.50 in Mobile]
First day of school. Love this boy to pieces and am so proud of him. But my heart hurts so much that his sister isn't beside him. #proudofmyboy#prayforphoebe #notthefirstdayweimagined
A year ago when he started school in Sheffield he was accompanied by a close friend, Isaac, and others from his nursery. We pray that this time he will quickly make good friendships.
Many thanks for your concern and prayers!
Marcus and Jen
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